r/mildlyinfuriating • u/petuniaplant • 14d ago
Infuriatig No, I did not consent to this
I was reading my medical notes when I stumbled across this. I was not informed of the usage of artificial intelligence in my report, nor did I verbally consent to it.
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u/corporateacademia 14d ago
My doctor asked me directly if i was okay with it. I said no and its reflected in my chart. You should be able to opt out of that
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u/DangerZoneFinder 14d ago
same, and they'd ask every time I visited, could be something new they're trying and just slipped their mind to ask
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u/crunkadocious 14d ago
Still a violation then. This shit needs out of medicine.
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u/Emergency_Bench_7515 14d ago edited 14d ago
This is literally one of the few good use cases for AI. It's not replacing a human it's just a tool being an aid so the Doctor can actively listen rather than focus on recording what is being said. For some people that can make a big difference.
edit: I've literally never seen a medical scribe, that's cool though. I don't think AI is needed, it just seems like medical roles are understaffed all around.
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u/Undeterminedvariance 14d ago
Meh. I got home from an appointment last year, logged in and read the visit note. Note said “patient uses cannabis daily to help with pain”.
I certainly didn’t say that. And I don’t need it in my medical record.
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u/Schwifftee 14d ago edited 14d ago
I told my doctor spontaneous emission and they recorded premature ejaculation, so there's that.
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u/super_hoommen 13d ago
I mean my doctors office had me down as a white Latina tobacco user (I am none of those things) so I think stuff like this happens regardless of the AI portion lol
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u/SnooMemesjellies1522 14d ago
Could that be why my visit summary said, "she is obese." Those exact words. I am 5'6" and weight 125 lbs. I asked my doctor about it and she took it off my record, but no explanation was offered.
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u/ToTooTwo3 13d ago
Because somebody accidentally hit the scribe button while conversing about someone else. Sometimes it even gets stuck on. Happening less as people get used to the tech.
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u/Typical_Goat8035 13d ago
Yeah similarly, my specialist was defending her medication choice, saying "if you were a chain smoker and drank 10 drinks a day, we would be picking a different treatment".
Then at my next checkup my PCP gave me this honesty speech about how being truthful with your doctors gets you the best care. I gave her a confused look and she turned her screen my way and showed me "addressed medication safety concerns due to heavy tobacco and alcohol usage" from that visit....
It taught me to read over my digital chart after each visit. I mean, I'm all for doctors having tools to help them with their busy schedules, I only mind when it leads to these kinds of inaccuracies.
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u/TennisOk4660 14d ago
The problem is, the places that are using the AI tool to help with charting/notes. It's getting things WRONG. Just a few weeks ago someone was on here confused AF because the AI put in there notes that they were male, when in fact they were a -female-. There was more to the story as well but, just no AI for hospital settings is just not ready.
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u/2red-dress 14d ago
This seems incredibly dangerous. The inaccuracies say AI is not ready to be relied on the way it apparently is relied on.
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u/samyall 14d ago
That is not an AI failure but a doctor failure for not checking the notes.
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u/mddesigner 14d ago
At that point remove the the ai It is much faster to write it myself than to double check the ai -gp
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u/sameoldfred 14d ago
It's sounds good until you learn that the transcription is outsourced to questionable third party.
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u/mddesigner 14d ago
As a doctor it isn’t hard to note down things the patient says What is hard is filing it in appropriate way the hospital will accept Like there is a lot of useless padding in hospital paperwork
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u/Watchmaker163 13d ago
No it’s not. Dictation software has existed for decades: if this was really about saving time/making sure things were recorded, they could use software specifically for that purpose. “AI” note taking is generative and will not reflect what is said, which means it is useless in a medical scenario.
One of my doctor’s offices started asking if I consented to a similar thing, I said no, and a couple months later they dropped it b/c they were having more problems than ever.
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u/UnderlightIll 14d ago
If a clinic or hospital is understaffed, that is usually by design. Doctors make them money but medical assistants and nurses do not. It is not a "good case" for AI when YOUR OWN medical information is put into the algorithm for training and data harvesting.
If they are understaffed, hire more.
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u/ObeseHamsterOrgasms 14d ago
yes, we use AI for xrays at work. i still look at the clinical view first because it isn’t perfect and doesn’t always get things right (we can manually reject any incorrect findings). but it is especially helpful in showing patients their own xrays, as it color codes things and gives measurements. it is much easier for a lay person to understand what i am trying to show them. i like it a lot just for patient education purposes. and i can just toggle right back to the clinical view for my own diagnostic purposes.
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u/slfan68 14d ago
Except it did replace humans. I'd actually argue it was one of the first sectors to be replaced by AI - medical transcription/medical scribe. My mother did that for over 20 years until they eliminated her job in the mid-2010's with speech recognition software that sucked ass at the time.
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u/SweatyCounter2980 14d ago
I don't trust it, it's a very thin line between "AI transcribing" to "AI interpreting your data and selling it to medical insurance companies". It also won't help your doctor, hospitals are increasingly designed for profit, so the administration would just increase their patient load now that they don't write notes, so they still won't be able to focus because they have so much more people to see.
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u/Linked713 14d ago
Dude that's a grand canyon, not a thin line. Selling your medical data is highly illegal and any doctor would lose their license. I get "ai bad yada yada" but let's not just spew nonsense
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u/Skurfer0 14d ago
It will also make a big difference when the AI hallucinates part of the conversation because the 62 year old GP isn't properly trained in how to generate effective prompts and uses the AI for a memory crutch to boot.
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u/EvidenceNo8561 14d ago
I agree that it can be useful, but the problem is that no one is checking it afterwards. Did you read the recent Reddit post about the woman who was a mail carrier? She described herself as a “mailwoman” and the AI recorded that she was transgender. Then after that it was a huge pain in the ass to fix it and it was insidiously on multiple charts. Imagine if she hadn’t read the notes and that had sat in her file for years?
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u/moropeanuts 14d ago
It is replacing the medical scribe. Medical scribing is a huge employment route that many pre-medical students take to learn on the job and get the money they need to survive and apply to medical schools. There is no other job that you can get before medical school that will teach you as much as a medical scribe who is 4 feet way from a doctor at all times for the entirety of their shift. Now future docs will go in without that experience.
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u/BootsDaBadAss 14d ago edited 12d ago
When are medical scribes used? I have never seen anyone taking notes during appointments or hospital visits, so I'm curious where/when they're actually used if it's so popular for med students.
Edit just to clarify: I'm not doubting anyone, just curious where they end up since it's clearly not in the (very mild) areas I end up at the doctor for.
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u/Crazhand 13d ago
Current medical student, I was one for Orthopedics. Many incoming students are doing the medical assistant/EMT route now since scribing is falling out of favor. Scribing is really nice though because you’re actually apart of the encounters and actually get to see what being a physician is like.
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u/Artistic_Chicken_557 14d ago
How dare doctors write notes based off your real time input!
Surely them sitting down 5 hours after your visit to write notes on the appointment is much better for you. Im sure they won't forget anything you said!
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u/AtlanticPortal 14d ago
It should be an opt in thing like it happened to you. Not an opt out.
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u/CustomerLittle9891 14d ago
FYI you didn't opt out of the scribe. You opted out of being recorded, but your doctor probably uses it after you're done.
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u/slippinthrudreamland 14d ago
from what i understand, if they weren't recorded, the scribe wasn't used. the "ai scribes" are specifically llms trained on medical data that work in conjunction with speech recognition programs. because the input it processes is spoken language, without a recording, nothing is done. i don't use these ai scribes in my line of work, though, so take my word with a grain of salt.
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u/CustomerLittle9891 14d ago
The scribes will transcribe a one-sided dictation incredibly well. I can conversationally tell my scribe the HPI and plan in about 1 to 2 minutes, what would take 5 to 10 to type manually.
If a patient declined the scribe in the room I dictate my notes after. Less efficient that way, but still way faster than the old way.
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u/FDFI 14d ago
Why would you opt out of a tool that helps the physician do their job better?
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u/gmcarve 13d ago
Why no to this and not other things, like computer use, telephone or fax ?
Must patients be asked to sign off on every piece of software used in the healthcare chain?
I don’t want to.
Use the tools that help you do your job best doc.
Focus more on me, less on the tablet. Sounds great.
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u/aminervia 14d ago
They often don't say "AI" -- maybe instead they asked if you were ok if they used a tool to transcribe the appointment?
I've always been asked, it's one of the first things out of their mouth
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u/Primary-Holiday-5586 14d ago
Ok, report it to the dr or the office. I've always been asked. Maybe they did and you missed it, or maybe they forgot. Ask them.
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u/MasticatingSheep 14d ago
Yeah. My doctor asks in a way that sounds like she's just recording the conversation. I don't really care either way, as I've even let her bring students in.
I kind of wonder if their doctor asked about recording and OP didn't put together that this note and that recording as the same thing.
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u/Dotcaprachiappa 14d ago
They are in no way the same thing. You can't blame OP for considering "recording" and "feeding to ai" as two separate things that should warrant two separate disclaimers.
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u/ClassicNebula1081 14d ago
Legally consent is needed to record. Consent is not needed to use ai.
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u/Little_Mechanic9462 14d ago
Sure but the situation here is that it it stated patient agreed to use AI for tramscribing and summarizing. Aomething the patient clearly did not do. Perhaps patient agreed to have it have it transcribed and summaried - but noy by "AI" they state ir like they clarified it would be AI.
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u/Fermently_Crafted 14d ago
Recording something and putting that recording through an LLM are two completely different things
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u/TFTHighRoller 14d ago
I may consent to recording and a student sitting in but i generally do not consent to my deeply personal data to be blindly used in AI stuff.
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u/ConLawHero 14d ago
It's all HIPAA protected. It's no different than the doctor manually writing notes except it is going to be more accurate and the doctor will pay more attention to you during the visit instead of trying to write some of the notes while talking with you.
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u/gamerdoc32 14d ago
As a doctor I can confirm this. Since using an AI scribe my notes are way better and I’m able to focus on the patient more (I work in primary care). Also this has been a game changer for my surgical colleagues who have to see an ungodly amount of patients in clinic. Their notes are now beautiful and everyone on the treatment team can follow along.
I see a wide variety of patients and I consent by asking “I have a software on my phone that will listen and type up our visit are you okay if I use it?” I and every doctor I know reviews it prior to submission because it is a legal document and we want it to be accurate.
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u/ConLawHero 14d ago
I'm a lawyer and I remember a case I was working on and I had to review handwritten doctor's notes, granted this was like 10 years ago, and I wanted to murder the doctor because they were rambling and completely incomprehensible. What I would have given for AI transcribed notes.
I also remember when my wife was in residency and was learning how to do notes and she would spend literally 5 to 6 hours writing all of the notes. I can't imagine what residency looks like now with AI. That was such a large part of why she was at the hospital for so long.
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u/Yamatocanyon 14d ago
It's really just about not having to spend most of the visit with the Dr typing away at the computer. I told my Dr hell yeah go for it, and visits feel a lot more personal because he just pays attention to me for most of the visit instead of clacking away at the keyboard for the whole thing.
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u/Mo_Steins_Ghost 14d ago edited 14d ago
There's forms he signed at some point that probably include that language. Usually at check in. If he didn't read them before signing, he probably should have... I'm not saying that they don't ramrod you through signing documents, but if you sign something before reading it, that pretty much cuts off any legal recourse unless you were forced to sign under duress.
A lot of doctor's offices in the US especially now do a thing where they have an electronic signing pad, they verbally tell you what you are signing (in far too short a description) and/or flash it on a screen and usually patients hurry through signing it without reading or asking to read what they are signing.
I like to make offices wait as I read through when they pull this shit.
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u/DeterminedQuokka 13d ago
I would wonder about this also. It’s possible they asked without saying ai. A lot of times they just say they are transcribing it. Not they are using ai to transcribe it.
It could also be in one of many many forms people sign.
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u/KayakerMel 14d ago
My PCP has been using an AI tool to help with documentation (that's writing up the notes) for around a year now. He takes out his phone at the start, asks for my verbal consent to use the AI tool, and even hits pause whenever we discuss something we might not want recorded (like complaining about insurance companies).
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u/Redxmirage 14d ago
These AI notes have been around since 2018 (earliest I saw it at least, don’t know when the first one was). Radiology has been using it around that time too for AI assessment to help catch misses. It’s more popular now but people acting like AI haven’t been in hospitals for near a decade now
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u/colorblind-and 14d ago
So much existing technology has gotten the AI label slapped onto by both the tech companies and the general public and it frustrates me to no end.
In this particular case there could be AI integration into the software now and if there's not voice to text software has always had similar privacy concerns to AI's.
I'd hope that something specifically developed for the medical field so long ago was made to be Hippa compliant.
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u/Flight_Harbinger 14d ago
So much existing technology has gotten the AI label slapped onto by both the tech companies and the general public and it frustrates me to no end.
Yep I've been feeling the same. I sell photography / videography equipment and a lot of manufacturers have been slapping "AI" on features that are indistinguishable from expectedly more advanced recognition algorithms. These are pieces of software that are more efficient, but not distinguishable from previous iterations in capability. Good luck explaining the difference to people anti-AI in its current state or super pro-AI in its current state.
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u/PinsToTheHeart 14d ago
Similar to how all convection ovens now have an "Air fryer" mode despite that being what it was the whole time lol
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u/ingodwetryst 14d ago
People don't realise how long 'machine learning' has been part of cameras either
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u/Obvious-Slip4728 14d ago edited 14d ago
What do you mean? Voice to text software has always used AI and it has always been called AI. A lot of existing technology is being called AI, because it is AI.
There have not been lots of privacy concerns as the AI model to run the voice recognition software can be run locally.
Privacy concerns mostly involve a specific subset of AI, called generative AI, especially when LLM are used that are so powerful that they cannot be run locally, raising concerns about data sharing and privacy.
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u/SapphicGarnet 14d ago
This reminds me of something that really pissed me off recently. So my GP does use an AI tool and told me, and I've seen plenty of news and posts like this of healthcare doing so.
Recently I was referred to a therapist by GP. After our session, she sent a letter to me and the GP detailing what issues I had and the next steps (this is normal for my condition, happened before).
So at the beginning of the session, she said "do you mind if I use a program that records and takes notes". Eh, I thought this is the new norm, if it makes it easier for you. During the session I said things like "I don't experience X but Y happens" or "it's not A but it really is B" where those are similar but VERY distinct in severity. In the letter, it says "SapphicGarnet experience X and has A." What??!!
So I shoot off an email to correct things. Thinking I'm being polite, I say "oh I think your AI notetaking tool misinterpreted things I said" rather than "you're not doing your damn job properly." She replied saying that AI was not used but she'd send a new letter with my corrections.
Then in the new letter she sent me to make sure i agreed there was "SapphicGarnet thought AI was listening to her in our appointment". It sounds like I'm bloody paranoid!
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u/etcpt 14d ago
HIPAA gives you the right to review and correct your medical record (assuming you're in the US). Send a note to your provider indicating that you did not consent and your medical record is incorrect. You may have to do a particular form with them. They have 60 days to respond to the request.
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u/ArtisticDragonKing 14d ago
I have a coworker in a vet clinic that asks patients if she can "audio record notes for the pet" and gives a brief explanation why. However, she fails to mention the audio recording directly inputs into an AI log that gives suggestions for her next steps. I strongly dislike her methods.
It may have been something like that?
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u/BumblebeeOfCarnage 14d ago
More likely it’s just a transcribing software. Still needs patient consent though. I’d say the bigger concern is the recording and not the AI in this situation
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u/Odd-Scientist-2529 14d ago
That’s not how it works. It doesn’t make any recommendations. It’s purely a scribe, and will summarize the conversation.
The doctor would have to say out loud in the exam room. “I recommend Fluticasone nasal spray” or “I recommend budesonide nasal spray” for it to construct the “plan” section of the note.
If this is what is happening to him, its 100% user error.
The only way it could happen is that he is rambling about possible treatment options out loud and isn’t clearly stating just the one he wants.
The AI scribe does not generate recommendations. It simply lists the ones that were verbalized in the visit.
To add evidence to this point: any medication or diagnostic test has to be manually typed in for it to appear in the note under the “Plan” section as an action item. Otherwise it would be in narrative form.
So this is user error.
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u/Harpunzel 14d ago
I believe some AI scribes including Heidi are now summarising clinical resources relevant to the presentation, with a clear link which recommendation comes from which resource. I haven't used Heidi since before that update, but some of my colleagues have and find it reliable. It only takes from locally relevant clinical guidelines rather than the whole internet.
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u/CustomerLittle9891 14d ago
Right now there isn't a active software that does that for human medicine.
Epic is about to roll out something that does, and a AI agent could easily transfer the scribes note into OpenEvidence or something, but not a direct "here are the recommendations" type program.
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u/Decent_Elderberry115 14d ago
For human healthcare it is scribe software that records the visit and turns it into a note. There should be a printed consent that gives the patient info about how the recording is used. I have coworkers who use AI. I do not because it writes shit notes full of errors.
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u/Fortestingporpoises 14d ago
Providers are definitely supposed to ask you directly for your permission. My wife provides therapy on one of the apps and asks her clients permission directly before using the AI notes.
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u/Nawoitsol 14d ago
My primary care physician is at the age where I discuss his potential retirement at every appointment. The last time we met he said the AI note taking has added at least a couple more years to his career. He had grown to hate the documentation part of his job. So I’m ok with AI notes. It’s really just the background for the appointment. Orders get put in directly.
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u/Bloodmind 14d ago
There’s a very good chance it was buried somewhere on some intake form that you signed at some point. Tell them you want to opt out if you don’t want it.
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u/jeanpaulmars 14d ago
My sister is a speech therapist (runs her own practice), and there too, patients/clients have to sign consent forms allowing her to consult with other doctors and/or the school (in the case of children).
She also uses speech-to-text and automatic summaries per treatment session.
Consent at her practice is essentially "take it or leave it": you agree and you can be treated, or you don't agree and she simply won't take you on as a patient.
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u/telebasher 14d ago
Folks, OP seems to be mildly infuriated over the inaccuracy of the notes, not that AI was used.
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u/petuniaplant 14d ago
Indeed. I am upset that the notes reflect something incorrect, that being I “verbally consented.”
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u/mvmstudent 14d ago
I work In healthcare and a lot of time doctors created templates with the consent verbiage already built in. Meaning he may not have used it but forgot to delete the consent part from his notes. Annoying for sure.
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u/1000LivesBeforeIDie 14d ago
You know what annoys the crap out of me is everyone suddenly getting excited about an “ai option” when they could have just been charting in Google Docs and using the microphone.
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u/homes_and_haunts 14d ago
Might depend on the state, but my providers (including vet!) have signs in the exam rooms saying that they use an AI scribe, and if you don’t object you’re consenting by default.
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u/caffeinebump 14d ago
I had my annual today and they asked me to read and sign their updated consent to care and there was a paragraph in it that said I was consenting to the use of AI.
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u/HyruleSmash855 14d ago
Same. I don’t remember AI coming up for a recent doctor visit over the phone, but when I looked at the output from the appointment, there was a clause about the patient consenting to AI being used for the transcription or something. The actual doctors note seem to have typos, so it did not look like an LLM output so I’m wondering if this post could have that clause being pasted into the notes by default or something.
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u/grodon909 14d ago
I am a doctor, and use AI for my notes. I made my note template such that it includes a disclaimer about the use of AI on the bottom, even if I don't end up using it or forget to turn it on. I also mix and match--I usually write my assessment myself because the AI don't do it the way I like, but I will throw in the plan it generates with some edits. It doesn't know how to prioritize information, so my subjective will be a series of phrases and sentences in an as close to logical order as I can get, while the AI subjective will include things like their complaints that have nothing to do with my specialty or tangents about something else.
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u/mcharytoniuk 14d ago edited 14d ago
The general goal of that is so that the doctor can spend more time with you instead noting down the entire visit through the keyboard manually... So that's actually a good use of AI.
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u/MaxSupernova 14d ago
I’m actually kind of happy with it because it means the doctor says *everything* out loud.
He gives more details and specifically narrates every single part of my checkup. I’ve learned more about things they’re looking for and the condition of my body since they started using the AI transcriber.
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u/CustomerLittle9891 14d ago
One thing I noticed when I started using mine is how much more conversational my visits became. I was no longer asking questions in ways I could easily document in the moment so I would only have to stay 1 hour late instead of 2.
If a patient wants to go on a longer tangent about their symptoms, I don't have to redirect the conversation back to easily documented bits
It's been really nice not shaping all of my visits around the need to document everything in a short amount of time.
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u/sparkyblaster 14d ago
I'll give you that. Every time I go to the dentist it seems there is another issue they want to tackle that they never mentioned to me. I had no idea a filling was failing.
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u/ZiggoCiP 14d ago
Most of it isn't even AI; it's dictation! Which has been a thing, voice-to-text, since the got dang 70s-80s!! People think it only happened in the 2000s because of phones, but it's been a thing, especially in medicine, for basically a half century, and it's only gotten better as time has gone on.
As for diagnostics, it's still unreliable, but simple voice-to-text has been a thing for a very long time. Speech-to-text isn't AI; it's just programs that transcribe speech.
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u/etcpt 14d ago
If and only if the provider then reviews the note for accuracy and completeness. See the person who posted on r/mildlyinfuriating a few months ago about their provider mischaracterizing them as MTF trans which appears to have been because the AI heard "mailwoman" (i.e., postal carrier) and interpreted "biological male identifying as a woman".
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u/WeeklyBanEvasion 14d ago
Also visit notes have become much more detailed and useful after the implementation of these AI transcribing services.
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u/Plumblossonspice 14d ago
You have limited time and a lot to do. An AI transcriber helps you log everything.
I’d prefer this to the days when hospitals etc kept hand-written scribbles in big folders that they carried from place to place - I’ve had my rheumatologist go ‘where is your file?’ And go running around looking for it. He’d picked up a stack and left my file in another room. Just imagine the risks. Plus, when they leave things out of the notation they made. Ever had a pharmacist ring the doctor’s office because they can’t read the handwriting? I have.
Transcribing makes sure everything is taken down and electronic systems mean that nothing is getting lost, things are easily shared between doctors and departments and fewer mistakes are made.
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u/GreenEggsSteamedHams 14d ago
But this doesn't fit the "AI IS BAD FOR EVERYTHING ALL THE TIME" narrative!!
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u/FireproofCottage 14d ago
They should be asking at the start of the visit. One of my doctors was in the military and they used something similar so he always asks. My GP forgets every single time; I only know she's doing it because, like OP, I read the notes. They're walking a fine line. How this is supposed to work is AI transcribes the visit, but the human health care worker is supposed to read the note before signing it.
I did medical transcription for a while right when this was being implemented. Some of the errors I found AI making were horrific, especially right versus left and when patients would describe a symptom and AI would inexplicably put "no" in front of the phrase. Good doctors catch those. Lazy doctors just sign, and the havoc perpetuates itself.
If you agree to your doctor using AI transcription of notes, look them right in the eye and say "I expect you to be reading the notes to confirm they're correct before they're signed off." Then that statement and the reply become a permanent part of your medical record should they ever be needed. Sometimes busy professionals need reminding that automation can't replace humans entirely.
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u/Fishwithadeagle 14d ago
For those wondering, if you say no, you're getting less face to face time. Having the ability to use DAX for charting my subjectives has allowed me to use significantly more time towards direct patient care rather than charting.
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u/bad_actor 14d ago
A Cone Health branch I visited in North Carolina relied on their AI summary to determine what happened during my physical. The AI said we had discussed a separate condition (we didn't) and I got billed for an additional visit. I fought it both in person and online and still couldn't beat the false charges. I was never asked about AI and absolutely would have declined.
So anyway I'm looking for a new doctor.
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u/Single_Principle_972 14d ago
That is exactly it, in a nutshell. Your physician is able to truly listen to you, while AI also listens. AI then summarizes the conversation - creates the doctor note - which the doc then modifies if necessary, and accepts it into your chart, and then the audio conversation is deleted. Your doctor is quite likely to not remember to, or not take the time to, document every bit of what you discussed, so AI is going to be a more accurate reflection of your office visit.
Source: I supported the ED module of the largest electronic medical record software company for many years. Also, I was a bedside nurse for many, many years before that… and if only I was smart enough to create AI I would have been a billionaire decades ago! Because I remarked to colleagues on several occasions that if only there was someone listening to my conversations and assessments of my patients, and then transcribing them for me into the chart, my charting would be a thousand times better! I often was running my tail off for 12 hours, with no opportunity to document - all that pesky saving of lives stuff is the priority - and then sitting down to chart. Trying to look back on 12 hours of patient care for sure meant I was forgetting to write down a lot of little things!
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u/girlikecupcake MILDLY? 14d ago
Did you file a complaint to get your record corrected?
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u/vonRecklinghausen 13d ago
I'm a physician. This technology is being used widely in our health system. It's so trash. Please report this to the clinic or hospital- they should have a Patient Liaison. Patient feedback is the ONLY thing that changes hospital culture. Please complain!!
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u/oortuno 14d ago
I was a medical assistant at one point and the Doctor would enter the room and immediately say, "Hi, I'm doctor _____, and I want to ask, if it's ok with you, if I could use this new software we're using that records our conversation and transcribes it into notes for me later. Nobody else will have access to the software's recording."
Bascially, you need to have the option to opt out, or at least be made aware that you are being recorded. If these two things are not provided to you, then I think you have grounds to sue. Of course, they will probably argue that you did consent to it at some point by signing something.
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u/iesharael 14d ago
My doctor always asks if I’m ok with the visit being transcribed. I always say yes because I am forgetful and want to be able to go back and find the answer to whatever weird questions I asked. Honestly it’s one of the AI uses I’m more ok with
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u/suppamoopy 13d ago
They've been using Dragon Speaking Easy since the early 90's and it worked fine. I don't understand the need to switch.
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u/shelaughs08 13d ago
The consent form patients sign at my job before every single visit has it in there. They very rarely get read.
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u/hymnic 12d ago
I usually haaaate AI, but thjs isn't generative* AI, it's a scribe. It doesn't store the audio from the conversations (too bulky), it doesn't use conversations to 'train' because scribe models are sold already trained, and any storage of transcriptions has to be done at the same level of security as all other medical documents. *It "generates" text, but the text is a (hopefully very accurate) record of what you and the doctor said, with no paraphrasing.
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u/BuckityBuck 11d ago
Are you sure? You read everything you signed, in detail? If so, ask the office for proof of your consent.
In general, you can tell. When a doctor pulls their cell phone out, it's because they're getting a transcript.
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u/deliciouscurryboy69 10d ago
I am a doc and I use AI scribes everyday. Tbh, its been one of thr biggest game changers for me because instead of wasting time documenting i can actually sit and focus on what patients are telling me. It also literally saves me about 1 full hour in a 12 hour shift, and now I can spend that time talking to people, educating them, reassuring them, etc. We need to make sure people's data is secure but lets also not miss a chance to actually use tech to restore the humanity in practicing medicine.
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u/TheDollarstoreDoctor 14d ago
What a good time to not be in health information management anymore, my blood pressure is spiking looking at this and the comments
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u/CustomerLittle9891 14d ago
How confidently wrong so many people are about the job, how it works and what these kinds of programs mean to providers is unreal.
It genuinely does make me wonder if we're just seeing the most susceptible to anti-AI propaganda just repeat buzzwords.
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u/sir_moleo 14d ago edited 14d ago
My after visit notes for almost every doctor I have has a bunch of things they "discussed" with me that never happened. They write these notes like they spent 20 minutes going over everything in detail when they spent 5 minutes in the room and booked it to their next patient lol.
Edit: A few examples from a recent dermatology appointment. This doctor is probably the worst offender for this kind of stuff. He spends like 3 minutes talking to me and then he's gone lol. There's no way he could possibly ask me all this stuff on top of the actual issues unless he was also an auctioneer.
- He has not had any blisters drainage bleeding fevers chills rigors or ulcers.
- He denies any headaches or dizziness abdominal complaints instability weight loss and he is not depressed or suicidal and really no other side effects.
- He denies any other suspicious pigmented lesions or palpable lymphadenopathy no infections and no purulent drainage or bleeding from any lesions.
- The diagnosis regarding the psoriasis was reviewed with the patient we did also discuss gentle skin care bathing moisturizing avoiding aggravating factors. We discussed treatment options risks benefits and side effects at length
- I did stress the importance for the use of sunscreens with an SPF of at least 30-45 wide brim hats and protective clothing and we did also discuss what to watch for for any changes in lesions and nevi.
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u/Hyperfocus_Queen 13d ago
As a patient with chronic illness, I found that doctors are playing fast and loose with consent these days. Notes include things that are incorrect or never happened, the forced use of AI with false consent, and so much more.
As a therapist, IMO, you cannot ask a patient in the moment for their consent for something like that (i.e. The doctor walks in and says “by the way is it OK if I use AI to document this appointment?”), you have to give patient an opportunity to think about your request and decline it without feeling pressured. To me, it’s similar to asking if a student doctor can participate, or if they share your case study in an academic environment. When it comes to documentation and private information, it just doesn’t feel right to me to ask a patient a question like that on the spot, and there’s times when I’ve even said yes when I didn’t actually mean yes because I felt like I wasn’t given any other options. It is not okay.
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u/TheTVDB 14d ago
AI in healthcare is a good thing. Diagnostic models have a higher rate of success than doctors. They shouldn't be the only tool they're using, but combined with the doctor's training and other tools, they're have been shown to improve patient care. These aren't LLMs we're talking about.
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u/GryphonCough 14d ago
I had this last time I went to the doctor and checked my notes online. I sent my doctor a message and she said that we had previously discussed it (we had not) and that it’s there just to help her transcribe notes.
This is all a fucking horrible idea. I’m so tired.
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u/orangecanela 14d ago
This happened to me recently - it was a different doctor (my regular PCP was not available) and I noticed the exact thing in the notes. He never asked for consent, so I was also irritated.
I'm not necessarily opposed to the use of AI to help my doctors take notes, but it was the fact that I never gave consent that was upsetting.
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u/FourFront 14d ago
The amount of shit people make up in their heads about what AI is, and isn't being used for is a derangement syndrome in itself.
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u/krt941 14d ago
Medical offices have been using AI transcribers since before the current AI crazy even started, haven’t they?
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u/goonsquadgoose 14d ago edited 14d ago
It’s seriously sad how ignorant so many people are. The medical field is exactly where you want to use AI. Triaging and diagnosing is literally following specific steps based on specific conditions, something computers are much better at than humans are. Not to mention general AI has been used over a decade in that field and people didn’t say anything until they saw it generating art.
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u/CustomerLittle9891 14d ago
It's genuinely a moral panic. That's why there's so little critical thinking about it.
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u/Jewronski 13d ago
This is machine learning getting lumped into the AI discourse. This is the same tech thats been on your phones for over a decade at this point, with a fancier wrapper, and a controlled output into a text file.
There may be some light actual chat gpt-age going on, but largely auto-scribe tech is one of the few good use cases for AI, and is a real time saver for doctors (who over the years have had a larger and larger paperwork burden foisted upon them)
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u/Maximum-Category-845 13d ago
Honestly there is probably a statement somewhere in all the consent forms everyone signs during intake that no one reads.
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u/StarlightInDarkness 13d ago
For many clinics/hospitals, it’s now part of the consents patients sign to be treated i.e. all those forms with registration.
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u/DizzyCommercial7705 12d ago
Look what I found in the notes from my last doctor's appointment:
"I informed the patient or Legally Authorized Representative about the use of ambient technology to assist in the creation of this note. The patient or Legally Authorized Representative provided their consent for the use of this technology."
No sir, she DID NOT!
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u/M15tre55W1tch 14d ago edited 13d ago
I work in ICU. The doctor's in our ED use an ambient AI scribe for documenting patient assessments and findings (it's a regulated tool where the data is stored locally and gets deleted from its memory after 90 days apparently).
They had this auto generated statement at the end of each note stating something like "this note was written using an AI scribe with patient consent".
I noticed that this statement was included on patients who were unconscious in the community, and did not regain consciousness before leaving ED and coming up to ICU.
I sent their manager an email saying it was going to look very bad when a patient's case is reviewed by legal or the Coroner and these doctors notes said an unconscious person gave consent.
If a patient genuinely consents to the use of the tool, that's great. But you can't be using it and claiming that they consented to its use when that's a medical impossibility.
Edit: thank you for the award internet stranger! Very unexpected.
Another edit: multiple awards! Thank you very much!